ATLANTA – Governor Brian P. Kemp announces the Georgia Rare Disease Advisory Council appointments.

Release:

Governor Brian P. Kemp announced his appointments to the Georgia Rare Disease Advisory Council, created by House Bill 918. The Council is comprised of 16 qualified professionals, persons living with rare diseases, and caregivers appointed by the Governor, Lieutenant Governor, and Speaker of the House. It will advise the General Assembly and other state agencies and departments on the needs of individuals with rare diseases living in Georgia.

There are more than 7,000 known rare diseases affecting approximately 25-30 million Americans, more than half of whom are children. Those living with rare diseases face many challenges, including delays in obtaining an accurate diagnosis, finding a healthcare provider with expertise in their unique condition, and a lack of access to therapies and medications used to treat such diseases.